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Here is a thumbnail of my MRI in December of 2011. My Neurologist tells me the scans prove I continue to be "stable."

 

  Despite the presence of a PML risk, the risk-benefit profile of Tysabri remains favorable. (Click the thumbnail for a larger version).

 

Tysabri: The Model For Facing A Drug Safety Crisis

 

FDA Updates TYSABRI(R) (natalizumab) Label to Include Anti-JC Virus Antibody Status as a PML Risk Factor

 

 

Here is ONE reason I am not stopping Tysabri; 

 

Fast MS Comeback May Ruin Drug 'Holiday'

 

Another reason I am not stopping is that Tysabri has improved my life 1,000% since I started in November of 2006 and I think the chances of getting PML are very, very slim (miniscule, actually).

 

FROM MY YOUTUBE CHANNEL; I am not out to "save the world" from MS (that would be extremely arrogant on my part), and I am NOT a hypochondriac, this is just MY story. Hint; Only God can save the world from anything.

 

I get a lot of positive mentions on an Investor Village message board. Most of these people have a direct investment in pharmaceutical companies like Biogen.

 

VERN BEACHY (JCV +) 60TH TYSABRI INFUSION VIDEO   

Sorry for the all caps shouting subject line but amidst all of the posts yesterday - Vern's 60th Tysabri Infusion video posted by upelan must have been missed by most here as it only has 4 recs.  

Please take the time to listen to Vern (at the link below) describe his 5 yrs on Tysabri while all the time being JCV positive.

This is a must see - must hear video and is a CELEBRATION     ...  of how good TYSABRI  has been for him compared, in direct contrast, to how he did on the ABC's.  

Thanks again upelan! and special Thanks and Congratulations to Vern and the whole Tysabri crew for making a hugh difference in the quality of life for MS Patients with a Choice and finally a Chance...   Double Kudo's      all around.  

 

 

Vern Beachy | Create Your Badge
 

 

What Tysabri has done for me; Click on the photo (below) to see my video.

 

 

Tysabri is a HIGHLY EFFECTIVE drug with some risks.

There is more information about the lowered risk of PML the longer a person is on Tysabri.

 

 

A friend recently told me that "Liberation" sounds like a word scammers would use. I agree, it just seems like propaganda. How do you recognize medical fraud scams? Check out this website.

 

The CCSVI theory is just simply wrong. A forum recorded on YouTube really gets the ire of those who are pushing the flawed theory. Just read some of the comments. Wow...do you talk to your mom with that mouth?

 

Here is my bottom line regarding CCSVI: "If I want to piss my money away I will go to Las Vegas."

 

An anti-CCSVI website recently reposted one of my YouTube videos.

 

 

 

 

Facebook, Twitter Spread Medical Misinformation

 

I am not a fan of the CCSVI theory because A) it is unproven and B) is NOT holding up under scrutiny and C) a lot of the CCSVI advocates claim detractors are just shills for doctors and big pharma. In other words; most are conspiracy theorists and a conspiracy theorist I am NOT. I think independently. It blows my mind that people with absolutely NO medical training think they know what is going on with peoples' bodies, and what doctors need to do to fix them.

 

“CCSVI” Proven to be a Figment of Zamboni’s Imagination; “Liberation” for MS is a sham

 

It is now October of 2011 and more and more studies on CCSVI are being conducted, but are not siding with Zamboni's findings.

 

 

Thousands of MS patients have travelled to clinics in such countries with lax medical regulations such as Poland, Italy, Kuwait, India, Bulgaria, Mexico and Costa Rica with unscrupulous doctors who perform the “liberation” for non-existent blocked veins for $8,000-10,000 or more.

 

Zamboni’s “liberation” scam for MS can kill

 

A Google search for CCSVI SCAM gets these results.

 

 I think CCSVI is a scam. Now, more and more studies, like this one conducted in Buffalo, New York, are throwing cold water on the CCSVI/MS connection. The CCSVI emperor has no clothes. If a person posts something on the social media networks like facebook and YouTube that 'questions' CCSVI, some of those who are pushing for CCSVI angrily attack the dissenters (I have been a target of those vitriolic posts). 

 

FOR THE LOW, LOW PRICE OF $8,000 (plus airfare, pills, etc.,) YOU TOO can get the unproven procedure at Synergy Health that may or may not alleviate some of your MS symptoms! WooHoo!

 

NO FEAR. I was recently tested (blood) for the presence of PML antibodies and I did test positive, which means I am susceptible to get the sometimes-fatal brain disease. So? My YouTube video on the topic can be seen here.

 

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 02/02/2012

 

 

 

 

 

 

Before Tysabri;

 

 

 

 

 

 

 

My Neurologist is Doctor Bruce Hughes, the head of the Ruan MS Center at Mercy Hospital in Des Moines.

 

Julie and I recorded a video where she talks about Tysabri and PML from a caregivers perspective. You can watch it here.

 

 

 

Reasons to NOT get angioplasty for MS.

This statement is very, very true;

CCSVI is not yet proven to be anything save a newly observed anomaly first found in a flawed study of people living with multiple sclerosis

Flawed study. Junk science.

The BBC recently did a scathing 2-part series about CCSVI. I do think the Liberation procedure is a costly scam.

Part 1;

Part 2;

 

The fact that Zamboni's research has NOT been duplicated is a significant indictment of the theory. Think "cold fusion" in the early 1990's.

 

 

 

 

 

 

 


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