Another reason I am not stopping is that Tysabri has improved my
life 1,000% since I started in November of 2006 and I think the
chances of getting PML are very, very slim (miniscule, actually).
FROM MY YOUTUBE CHANNEL; I am not out to "save the world"
from MS (that would be extremely arrogant on my part), and I am NOT
a
hypochondriac, this is just
MY story. Hint; Only God can save the world from anything.
I get a lot of positive mentions on an Investor Village message
board. Most of these people have a direct investment in
pharmaceutical companies like Biogen.
Sorry for the all caps shouting subject line but amidst all of
the posts yesterday - Vern's 60th Tysabri Infusion video posted by
upelan must have been missed by most here as it only has 4 recs.
Please take the time to listen to Vern (at the link below)
describe his 5 yrs on Tysabri while all the time being JCV positive.
This is a must see - must hear video and is a CELEBRATION
... of how good TYSABRI has been for him compared, in direct
contrast, to how he did on the ABC's.
Thanks again upelan! and special Thanks and
Congratulations to Vern and the whole Tysabri crew for making a hugh difference in the quality of life for MS Patients with a
Choice and finally a Chance... Double Kudo's all
around.
What Tysabri has done for
me; Click on the photo (below) to see my
video.
Tysabri is a HIGHLY EFFECTIVE
drug with some
risks.
There is more information about the
lowered risk of PML the longer a person is on Tysabri.
A friend
recently
told me that "Liberation" sounds like a
word scammers would use. I agree, it just seems like propaganda. How
do you recognize medical fraud scams? Check out
this website.
The
CCSVI theory is just simply wrong.A
forum
recorded on YouTube really gets the ire of those who are pushing the
flawed theory. Just read some of the comments. Wow...do you talk to
your mom with that mouth?
Here is my bottom line regarding CCSVI:"If I
want to piss my money away I will go to Las Vegas."
An anti-CCSVI website
recently reposted one of my YouTube videos.
I am not a fan of the CCSVI theory because A) it is unproven and
B) is NOT holding up under scrutiny and C) a lot of the CCSVI
advocates claim detractors are just shills for doctors and big
pharma. In other words; most are conspiracy theorists and a
conspiracy theorist I am NOT. I think independently.
It blows my mind that people with absolutely NO medical training
think they know what is going on with peoples' bodies, and what
doctors need to do to fix them.
It is now October of 2011 and more and more
studies on CCSVI are being conducted, but are not siding with
Zamboni's findings.
Thousands of MS patients have travelled to clinics in such countries
with lax medical regulations such as Poland, Italy, Kuwait, India,
Bulgaria, Mexico and Costa Rica with unscrupulous doctors who
perform the “liberation” for non-existent blocked veins for
$8,000-10,000
or more.
A Google search for CCSVI SCAM gets
these results.
I thinkCCSVI isa scam. Now,
more and more
studies, like
this one conducted in Buffalo, New York, are throwing cold water
on the CCSVI/MS connection. The CCSVI emperor has no clothes. If a
person posts
something
on the social media networks like facebook and YouTube that
'questions' CCSVI, some of those who are pushing for CCSVI angrily
attack the dissenters (I have been a
target of those vitriolic posts).
FOR THE LOW, LOW PRICE OF $8,000 (plus airfare, pills, etc.,) YOU
TOO
can
get the unproven procedure at Synergy Health that may or
may not alleviate some of your MS symptoms! WooHoo!
NO FEAR.
I was recently tested (blood) for the presence of
PML antibodies and I did test positive, which means I am
susceptible to
get the sometimes-fatal brain disease. So? My YouTube video on the topic
can be seen
here.